NASS - National Ankylosing Spondylitis Society

Amardeep Gill
020 8741 1515
amardeep@nass.co.uk

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 The National Ankylosing Spondylitis Society (NASS) is the only registered charity dedicated to supporting anyone affected affected by ankylosing spondylitis (AS) in the UK. 

Ankylosing spondylitis (axial spondyloarthritis) (AS) is a painful, incurable inflammatory arthritis, mainly affecting the spine. It affects around 200,000 people in the UK, and symptoms tend to start between the ages of 18-24.
 

AS can have a devastating impact on education, work, social and family life. Around a third of people with AS are unable to work.

Since 1976 NASS has been the only charity dedicated to educating, informing and empowering people with AS to manage their disease more effectively and make more informed choices about their care. We do this by: 

  • Responding to daily requests for advice and information by telephone, email and letter on a wide range of topics including associated diseases, medication, practical aids, employment, insurance, benefits and more;  
  • Producing a variety of resources including patient guides, fact sheets, audio podcasts, exercise DVDs and materials for people with AS and healthcare professionals; 
  • Providing regular supervised hydrotherapy and physiotherapy sessions through a network of over 90 volunteer branches around the UK;  
  • Keeping people up to date with the latest developments in effective treatment of the disease via the website, email alerts and our bi-annual newsletter for members and health professionals; 
  • Acting as advocate for people with AS working alongside the National Institute for Health and Clinical Excellence (NICE), health service providers and policy makers in raising the profile of AS and, in particular, the need for earlier diagnosis and access to appropriate care; and 
  • Actively encouraging participation into research into the cause, genetics, treatment and management of the disease.  

NASS receives no government or statutory funding. We rely on donations from the general public to ensure we can continue providing life-changing support to anyone affected by AS. This is why people like you are so important.


 

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